Latest in: Life at home
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September 16, 2022
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You have gained 110 pounds in 12 years. Usually, this is not something people celebrate... but with you... its amazing. 9/16/2010: 1 lbs 12 ozs. 9/16/2013: 31 lbs. 9/16/2017: 50lbs 9/16/2022: 111 lbs You …
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September 15, 2022
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The NICU can be a very isolating and lonely place.   I am not saying you are really ever alone in the NICU. How could you be with all the nurses, doctors, specialists, social …
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June 7, 2022
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There are so many things that you obsess over when you are in the NICU. Is my baby breathing ok? Is their heart rate OK? Are they gaining weight? Are they maintaining their own …
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May 19, 2022
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Graduation Day Congratulations! You have finally made it to NICU graduation day. No matter how long or short your stay in the NICU has been, graduation day is a BIG deal. One to celebrate …
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February 2, 2022
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Repost: This was originally published in 2013 on shine.yaoo.com (a site which has since been shut down) Postpartum depression (PPD) has been great fodder for many a sitcom writer. Even in pregnancy and birth …
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November 12, 2021
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Welcome to Prematurity Awareness Month... and my book publication month. In honor of these two big events, I have committed myself to writing a new post a week. Say that fast five times. Ok. …
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November 3, 2021
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Welcome to Prematurity Awareness Month... and my book publication month. In honor of these two big events, I have committed myself to writing a new post a week. So, you are going to be …
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September 16, 2021
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If I am posting, it can only mean one thing.... It's Sam's birthday. That's right. This former One Pound Twelve Ouncer is now eleven. I am not sure who is more excited about this... …
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September 16, 2020
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Its hard to believe Sam is now 10, double digits, an entire decade old. For a kid that was given little odds of survival, Sam has done his best to LIVE. And not just …
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July 28, 2020
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Who knew when I brought Sam home from the NICU way back in 2010 that my 5 months of house arrest would end up being so useful ten years later. Now, of course, house …
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September 10, 2019
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Hear ye! Hear ye! PTSD season is upon us. I don’t mean to make light of a very serious condition – but making light of it is the only way I manage to get …
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September 16, 2017
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Then you were only 1 lbs 12 ozs. At 3, you were 31 lbs. Now, you are almost 50(?!) pounds     Then your heart had a leaky valve. At 3, a tiny clip …
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May 15, 2017
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Since this blog launched, I have always referred to Sam as "Sam, the Anti-Preemie". I am thinking of changing his name to "Sam, the Pre-Existing Condition". When Sam decided to make his early entry …
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January 4, 2017
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I have debated writing about my battle with my local school district publicly. What if someone reads this and all my hard work goes down the drain due to someone's bruised ego. But then …
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September 16, 2016
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My sweet boy. It has been a while since I wrote just to you. Life with you is never dull - and I am so thankful for that. There are a few things I …
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July 25, 2016
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There is one topic I have written about on this site a lot: poop or the lack thereof. From the day Sam was born the one thing he wasn't so good at was pooping. …
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June 10, 2016
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Want to know what overwhelmed looks like... well... it looks like me.  Since Sam's IEP, I have done what I do best - educate myself.  I have read the full IDEA statute.  I have …
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November 17, 2015
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I "celebrated" my first World Prematurity Day in the NICU. Sam was just two months old actual and was on his second full day of being off oxygen support. A lot has changed since …
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May 26, 2015
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When Sam graduated from the NICU, we were lucky. Aside from our pediatrician, Sam only had one specialist, a retinoligist That didn't last long. Pretty soon we added in the developmental playgroup (which came …
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March 22, 2015
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This morning was magical. No seriously. Magical. I was in the kitchen getting breakfast made when I first hear it. It was faint and in the distance. Then it got louder. Giggling. Lots of …
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February 11, 2015
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Potty training is something many parents fear. Hundreds, if not thousands, of books are dedicated to helping ease the transition from diaper to potty. There are even "How To" videos on the subject. There …
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January 23, 2015
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Everyone always focuses on the negatives of an autism diagnosis. Myself included. So today I figure I will focus on the positives of an autism diagnosis. Autism is not a fatal diagnosis. Yes it …
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November 19, 2014
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The idea was simple enough. Well, as simple as a hospitalization and surgical procedure on a 4 year old could be. But this is Sam. And he has never - ever - done anything …
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October 29, 2014
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I know - Sam's birthday came and went without my usual post talking about the emotional stress leading up to his birthday and the joy of the actual celebration. I wish I had a …
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